Françoise
09-04-2003, 01:36 AM
John,
I am sorry but I cannot help you with your testosterone problem. I know
nothing about it being a woman.
I just want to say that I belong to another group and some women has
been injecting Forteo since January and are very please with it. Most of
them could not take any other medication because of bad reaction to
them. Most of them who had a new Dexa scan, have improve their T score.
What they are most happy about is that the pain they were experimenting
before due to fractures seems to have disappeared. If you cannot take
Forteo than I know of no solution. I hope someone will find a way to
correct the lack of testosterone.
Good luck,
Françoise.
John wrote:
> Dear All,
>
> I've been around this board as a user back when Jerry
> founded it and later as the moderator. I am now in the
> position where I desperately need help and any idea i can
> get is worth looking at.
>
> I am a 51 yr old white male with osteoporosis to the tune
> of - 4.2. It was diagnosed back in 1998 or maybe 1997 but
> whatever it has not responded to treatment. It was caused by
> a combination of steroid injections ( nerve blocks ) and the
> steroids used during my back operations. In any case i am
> stuck. I've been on Fosamax since even before it was
> released as a test patient. THe docs added Miacalcin for a
> few years and then stopped that . Additional Calcium (
> Citrical and Citrical D ) is a daily regimen along with what
> exercise i can perform. I have also been injecting
> Testosterone Cypionate for most of these years due to a low
> count. All seemed fine until a few months ago when my blood
> counts went wacky.
>
> testosterone dropped to near zero - while PTH doubled normal
> maximum value. Thyroid tests - ultrasound, Cat scan - and
> finally an actual biopsy have come back negative and all
> other blood values are near or at normal. What's worse is
> that something in my body is eliminating testosterone real
> quick - where i used to get reading of ( before and 1 day
> after injection ) of 350 and 800. I now get 30 and 75. The
> docs swore i was not injecting it and then after they tried,
> we got new vials and then even tried another form of
> injectable testosterone yet the same results keep coming up.
> The last doc injected a full 3cc ( 100mg/per cc) which
> should have driven my levels to the 2000 level barely and
> touched 100. We all figured the test lab went crazy so we
> tried a 2nd and then a 3rd - all seperate test facilities
> and the results are all within reason of each other. This
> nightmare is real.
>
> My last DXA scan shows a 4% net loss from two years ago
> despite all of the above.
>
> My doc was one of those using Forteo on test patients and is
> not in favor of this drug - even worse now that my own PTH
> has gone wacky, it is not even a viable option.
>
> I have just today contacted a research group only to be told
> that it was all women and they knew of ZERO test groups that
> included men.
>
> I had been to the super duper Columbia Presbyterian Medical
> Center ( New York City ) and in particular it's Metabolic
> Bone unit back in 1998 when they basically said there was no
> hope and wrote me off. Ditto for the famed Kessler rehab
> center/hospital of Superman fame. At that stage local
> specialists started on me and i kept up hope. THat hope was
> dashed badly these past few weeks and i am wondering --
>
> HAs anyone read or heard of anything new or not in the
> mainstream lately? I read a lot but hopefully there is
> something that my docs and i am missing. If you have any
> idea then post it or send it to me and i will be grateful
> for it and your effort even if it may seem that i should
> know if it already.
>
> Thanks In Advance
> John
>
> NJ USA
I am sorry but I cannot help you with your testosterone problem. I know
nothing about it being a woman.
I just want to say that I belong to another group and some women has
been injecting Forteo since January and are very please with it. Most of
them could not take any other medication because of bad reaction to
them. Most of them who had a new Dexa scan, have improve their T score.
What they are most happy about is that the pain they were experimenting
before due to fractures seems to have disappeared. If you cannot take
Forteo than I know of no solution. I hope someone will find a way to
correct the lack of testosterone.
Good luck,
Françoise.
John wrote:
> Dear All,
>
> I've been around this board as a user back when Jerry
> founded it and later as the moderator. I am now in the
> position where I desperately need help and any idea i can
> get is worth looking at.
>
> I am a 51 yr old white male with osteoporosis to the tune
> of - 4.2. It was diagnosed back in 1998 or maybe 1997 but
> whatever it has not responded to treatment. It was caused by
> a combination of steroid injections ( nerve blocks ) and the
> steroids used during my back operations. In any case i am
> stuck. I've been on Fosamax since even before it was
> released as a test patient. THe docs added Miacalcin for a
> few years and then stopped that . Additional Calcium (
> Citrical and Citrical D ) is a daily regimen along with what
> exercise i can perform. I have also been injecting
> Testosterone Cypionate for most of these years due to a low
> count. All seemed fine until a few months ago when my blood
> counts went wacky.
>
> testosterone dropped to near zero - while PTH doubled normal
> maximum value. Thyroid tests - ultrasound, Cat scan - and
> finally an actual biopsy have come back negative and all
> other blood values are near or at normal. What's worse is
> that something in my body is eliminating testosterone real
> quick - where i used to get reading of ( before and 1 day
> after injection ) of 350 and 800. I now get 30 and 75. The
> docs swore i was not injecting it and then after they tried,
> we got new vials and then even tried another form of
> injectable testosterone yet the same results keep coming up.
> The last doc injected a full 3cc ( 100mg/per cc) which
> should have driven my levels to the 2000 level barely and
> touched 100. We all figured the test lab went crazy so we
> tried a 2nd and then a 3rd - all seperate test facilities
> and the results are all within reason of each other. This
> nightmare is real.
>
> My last DXA scan shows a 4% net loss from two years ago
> despite all of the above.
>
> My doc was one of those using Forteo on test patients and is
> not in favor of this drug - even worse now that my own PTH
> has gone wacky, it is not even a viable option.
>
> I have just today contacted a research group only to be told
> that it was all women and they knew of ZERO test groups that
> included men.
>
> I had been to the super duper Columbia Presbyterian Medical
> Center ( New York City ) and in particular it's Metabolic
> Bone unit back in 1998 when they basically said there was no
> hope and wrote me off. Ditto for the famed Kessler rehab
> center/hospital of Superman fame. At that stage local
> specialists started on me and i kept up hope. THat hope was
> dashed badly these past few weeks and i am wondering --
>
> HAs anyone read or heard of anything new or not in the
> mainstream lately? I read a lot but hopefully there is
> something that my docs and i am missing. If you have any
> idea then post it or send it to me and i will be grateful
> for it and your effort even if it may seem that i should
> know if it already.
>
> Thanks In Advance
> John
>
> NJ USA